What I Wished I Knew

  • Research type

    Research Study

  • Full title

    What I Wished I Knew: A qualitative analysis of service users, carers and clinician's experiences of treatments for comorbid eating disorder and autism.

  • IRAS ID

    324174

  • Contact name

    Joanna Holliday

  • Contact email

    joanna.holliday@oxfordhealth.nhs.uk

  • Sponsor organisation

    Oxford Health NHS Foundation Trust, Research and Development Department

  • Duration of Study in the UK

    0 years, 3 months, 22 days

  • Research summary

    The current study will bring together the perspectives of young autistic people (suspected or formally diagnosed with autism), carers of autistic people and healthcare professionals working with eating disorders and representing a wide range of eating disorder services, to better understand their treatment experiences and what they wished they had known or had in place when starting their treatment journeys.

    This present study will therefore seek to build on previous literature. Although studies have shed light in this area, there is limited evidence on experiences of younger people accessing outpatient eating disorder services. Existing studies have only explored the views of autistic females, and therefore, this study will seek to explore views of treatment held by autistic men, as well as non-binary and transgender individuals. This can inform specific treatment adaptations to better understand the complex needs of the wider autistic population with eating disorders.

  • REC name

    East of England - Essex Research Ethics Committee

  • REC reference

    23/EE/0175

  • Date of REC Opinion

    3 Aug 2023

  • REC opinion

    Further Information Favourable Opinion