vWD 360

• Research type

  Research Study

• Full title

  VWD 360: The Lived Experience of People with von Willebrand Disease

• IRAS ID

  328463

• Contact name

  Simon Fletcher

• Contact email

  Simon@haemnet.com

• Sponsor organisation

  Haemnet Ltd

• Duration of Study in the UK

  1 years, 0 months, 31 days

• Research summary

  von Willebrand disease (vWD) is reported to be the most common bleeding disorder, with prevalence estimated at 1% of the general population. Despite this, little is known about its natural history, or of the impact it has on affected individuals.

  The Haemnet vWD.360 programme is a mixed-methods, natural history study designed to better understand vWD and its impact on individuals. It comprises both qualitative and quantitative approaches and is designed to include the perspectives of individuals with a diagnosis of any subtype of vWD

  The vWD.360 study includes three components:
  - A survey
  - A single one-to-one interview
  - A 30-day symptom diary.

• REC name

  London - Brighton & Sussex Research Ethics Committee

• REC reference

  23/PR/1013

• Date of REC Opinion

  27 Oct 2023

• REC opinion

  Further Information Favourable Opinion