Vitamin D status in Children and Young People with Cerebral Palsy

  • Research type

    Research Study

  • Full title

    Vitamin D status in gastrostomy/jejunostomy fed compared with orally fed children with cerebral palsy (GMFCS 2-5)

  • IRAS ID

    93310

  • Contact name

    Brahan Thara Sathyamoorthy

  • Contact email

    Brahan.Sathyamoorthy@wales.nhs.uk

  • Sponsor organisation

    301068

  • Duration of Study in the UK

    1 years, 0 months, 1 days

  • Research summary

    Vitamin D level monitoring in children with cerebral palsy is recommended but the practice of active monitoring and how widespread vitamin D deficiency is in these children in Wales is not known.

    We know that children with neurodisability are at an increased risk of vitamin D deficiency, but those receiving feeds through the stomach (gastrostomy) or a part of the small intestines (jejunostomy) may be protected by the nutritional content of their feeds. We also want to compare the vitamin D statuses of children and young adults with cerebral palsy receiving feeds through the stomach and small intestines with those who are orally fed & on vitamin D supplements.

    Our study would identify if the participants are vitamin D deficient or not, and would prompt treatment and monitoring, which could potentially prevent harm from vitamin D deficiency. If we find that vitamin D deficiency is not prevalent in our participants, clinicians could use our data to help target who needs vitamin D levels monitoring which could save resources and finances for health boards, and decrease the burden of blood tests for these children.

  • REC name

    Wales REC 5

  • REC reference

    23/WA/0122

  • Date of REC Opinion

    6 Oct 2023

  • REC opinion

    Further Information Favourable Opinion