Validation of a POEM (patient reported outcome and experience measure)
Research type
Research Study
Full title
Validation of a short questionnaire of patient reported outcome and experience.
IRAS ID
223801
Contact name
Rupert Bourne
Contact email
Sponsor organisation
Anglia NHS Foundation Trust
Duration of Study in the UK
1 years, 0 months, 0 days
Research summary
A short questionnaire, the glaucoma patient reported outcome and experience measure (POEM) was developed as part of a patient engagement exercise in 2013. The questionnaire requires further validation before it can be used in clinical practice. This study aims to validate the POEM against both clinical measures (Visual acuity and field of vision deficits) and existing, longer questionnaire tools. It also aims to optimise its psychometric properties in order to ensure that it works reliably.
The intention of the glaucoma POEM is to measure two domains. The patient’s perception of their experience of health care (the humanity of that care), and the patient’s perception of their health related quality of life. The glaucoma POEM has been developed in a series of focus groups with patients. It has then been scrutinised by physicians to comment on the wording and language and to assess the content and the importance of the concepts tested. It was then reviewed again in focus groups by patients to get further feedback on the content, design and to reduce the risk of ambiguity in the phrasing of the questions. The current questionnaire consists of 8 questions.
In this study subjects will be asked to fill in a series of questions which includes the POEM and several other commonly used questionnaires. Information will also be collected on the subject's visual acuity, visual field, age, gender and diagnosis. The subjects will be identified in glaucoma clinics in eye departments in England and will be offered the chance to complete the questionnaires either on paper or online by their clinician.
REC name
West Midlands - South Birmingham Research Ethics Committee
REC reference
17/WM/0112
Date of REC Opinion
15 Mar 2017
REC opinion
Favourable Opinion