Validating the CAIDS-Q in a paediatric setting
Research type
Research Study
Full title
The validation of the Child and Adolescent Intellectual Disability Screening Questionnaire (CAIDS-Q) in a paediatric setting.
IRAS ID
2645
Contact name
Karen McKenzie
Contact email
Research summary
The early recognition of intellectual disability (ID) is important to ensure appropriate support is provided to maximise the child’s development (Guralnick, 2005); to identify and provide specific interventions to improve the skills and functioning of the child (Chadwick et al., 2005); to provide support and information to family members (Hassall et al., 2005); and creates the possibility of establishing the underlying aetiology (Blum, 2013) which can have important implications for the child and his/her family. The paediatrician plays a crucial role in the early identification of those children who are likely to have ID, however, diagnosing ID can be complex and time consuming (Ryan et al., 2007) and requires assessment by an appropriately qualified psychologists. Not all paediatric services have ready access to applied psychologists which may result in great variability in the point at which children are diagnosed, indicating health inequalities. As well as having a negative impact on the child, delayed diagnosis has been found to be associated with parental stress and dissatisfaction with services (Watson et al., 2011), indicating poor patient/carer experiences.
Aims
The project aims to pilot the introduction of the Child and Adolescent Intellectual Disability Screening Questionnaire (CAIDS-Q) into pediatric services in NHS Lothian, as a means of quickly and accurately identifying those children who are likely to have an intellectual disability (ID).The CAIDS-Q has strong psychometric properties (McKenzie et al., 2012) and can identify those who have ID with a high degree of accuracy, but has not been validated for use in a paediatric population.REC name
East Midlands - Derby Research Ethics Committee
REC reference
14/EM/1024
Date of REC Opinion
12 Jun 2014
REC opinion
Further Information Favourable Opinion