Use of routine healthcare and operational hospital data for research
Research type
Research Database
IRAS ID
301663
Contact name
NJ Sebire
Contact email
Research summary
GOSH Clinical Informatics Data Store
REC name
London - South East Research Ethics Committee
REC reference
21/LO/0646
Date of REC Opinion
13 Oct 2021
REC opinion
Favourable Opinion
Data collection arrangements
Great Ormond Street Hospital (GOSH) is the largest children’s hospital in the UK, and as part of the routine care of children at GOSH, a large amount of data is recorded. Unfortunately, hardly any of this data that is collected is used to improve services or find out things which may help future patients.
This project will make all of the data routinely collected at the hospital, both healthcare data and operational data with a view to improving care for patients and families at GOSH and beyond. Data will be non-identifiable, by using an encryption key for each patient, so that it is possible for researchers to use the data for patient benefit without needed to know any personal details such as names or other identifiers. The only data that will be stored will be that collected as part of routine care at GOSH, there is no 'additional' data collection. This non-identifiable data will be managed and stored in a dedicated GOSH research data store which has all usual NHS security arrangements and will only be used by GOSH and associated researchers who are investigating ways of improving child health care and/or outcomes.Research programme
This application aims to allow the further development of a high-quality, value-adding digital research environment, with a secondary use research database containing deidentified routinely collected clinical, and operational, data for research use. The overall aim of this work is to use clinical and operational data for data analytics to improve the treatment and management of patients at GOSH and beyond. We will not be developing software, or any AI tool, to assist with clinical decision making based on the patient data. We are using the models generate to gain a better understanding of the data.
Research database title
GOSH Clinical Informatics Data Store
Establishment organisation
Great Ormond Street Hospital
Establishment organisation address
Great Ormond Street
London
WC1N 3JH