University College London NHS Foundation Trust Data Only Studies
Research type
Research Database
IRAS ID
299136
Contact name
Wai Keong Wong
Contact email
Research summary
University College London NHS Foundation Trust Data Only Studies
REC name
South West - Central Bristol Research Ethics Committee
REC reference
21/SW/0089
Date of REC Opinion
5 Aug 2021
REC opinion
Favourable Opinion
Data collection arrangements
UCLH has become a fully digital hospital in April 2019. All the information that is routinely captured by UCLH about patients and the care they receive are now recorded in our electronic health record system, creating a complete record for our patients’ when they are at UCLH.
We recognise that this same information has immense value to researchers both within UCLH and UCL to derive new insights and knowledge for patient and public benefit. We also understand from patients and our staff that they would appreciate greater awareness of kind of research that their data is being used for and to be actively involved in shaping the direction of research at UCLH.
The new data requesting process what we have created puts patients and staff right at the centre of influencing and approving data-only research projects at UCLH. It also aims make the process faster and more transparent, and ensure that researchers receive the support that they need to maximise the chance of delivering on the aims of their projects.
Data under this process will be anonymous and for [projects that UCLH and UCL are responsible for. This will sometimes involve collaborations with other universities, NHS institutions and industrial partners.
Research programme
As this is a requesting process for all data-only studies, the kinds of research this enables reflects breadth of clinical service we provide at UCLH and the disease areas that are directly relevant to our patients and staff. The potential benefits from the research are broad. Examples include :- 1) Better ways of running the hospital and designing the clinical service we provide. 2) New insights into existing diseases and identifying criteria for new diseases. 3) Development of new digital tools to make patient care safer and more personalised. These could include tools created by the application of machine learning. We also aim for the outputs of research to be applicable to patients in other healthcare organisations and to lead to further research.
Research database title
University College London NHS Foundation Trust Data Only Studies
Establishment organisation
University College London Hospitals NHS Foundation Trust
Establishment organisation address
250 Euston Road
NW1 2PG