Understanding health promotion for people with Down syndrome: version 1
Research type
Research Study
Full title
Understanding health promotion at the NHS Fife Down syndrome general health screening clinic
IRAS ID
171899
Contact name
Jo Inchley
Contact email
Sponsor organisation
The University Court of the University of St Andrews
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
0 years, 5 months, 31 days
Research summary
This research aims to investigate the delivery and uptake of health promotion advice at the NHS Fife Down syndrome general health screening clinic. People with Down syndrome have a lower life expectancy than the general population due to increased vulnerability to a number of diseases. Healthy lifestyle changes can help to reduce the risk of disease and promote health and wellbeing. As well as screening for specific conditions, the multidisciplinary staff team within the NHS Fife Down syndrome clinic provide a range of health promotion advice to clients. However, it is unknown how effective such health promotion is with these clients, who also have issues with understanding, communication and memory associated with their condition. This small-scale qualitative study is the first to explore how health-promoting advice is received by individuals attending the clinic, and potential barriers to implementing the advice. Primary methods of data collection will include focus groups, interviews and consultation checklists developed for the study. A consultation checklist will be used to examine what health promotion advice is communicated to each client by the health practitioners. In addition, clinic staff will be invited to take part in a focus group to discuss their views and experiences of providing health promotion advice. Following attendance at the clinic, interviews will be undertaken with clients who have consented to take part in the research, and their carers, to explore what is recalled, understood and implemented by the client with down syndrome and their carer or support worker and identify reasons why the client may or may not engage in the recommended healthy behaviours. Data will be analysed using thematic analysis, and written up for the lead researcher’s MSc thesis. The findings will also be distributed to the clinic staff to help them understand the effects of their health promotion.
REC name
South West - Central Bristol Research Ethics Committee
REC reference
15/SW/0070
Date of REC Opinion
11 May 2015
REC opinion
Further Information Favourable Opinion