UK Primary Sjogren's Syndrome Registry

• Research type

  Research Tissue Bank

• IRAS ID

  254397

• Research summary

  United Kingdom Primary Sjogren's Syndrome Registry

• REC name

  North West - Haydock Research Ethics Committee

• REC reference

  19/NW/0076

• Date of REC Opinion

  22 Mar 2019

• REC opinion

  Favourable Opinion

• Data collection arrangements

  Written consent will be sought to collect blood samples and data from healthy controls and participants with Primary Sjogren's Syndrome. Samples and data will both be link-anonymised and stored at Newcastle University.

• Research programme

  The biobank is funded and supported by the British Sjogren's Syndrome Association as well as local PSS patient support groups.

• Storage license

  12534

• RTBTitle

  United Kingdom Primary Sjogren's Syndrome Registry

• Establishment organisation

  Newcastle University

• Establishment organisation address

  Newcastle Biobank, Medical School

  Framlington Place

  Newcastle upon Tyne

  NE2 4HH