UK Ileal pouch registry
Research type
Research Database
Full title
The UK Ileal Pouch Registry
IRAS ID
105479
Contact name
OD Faiz
Contact email
Research summary
UK Ileal pouch registry
REC name
London - Brent Research Ethics Committee
REC reference
13/LO/0199
Date of REC Opinion
11 Mar 2013
REC opinion
Favourable Opinion
Data collection arrangements
Date of birth, Gender, date of surgery, Surgical speciality, Diagnosis, Disease extent, year of diagnosis and onset of symptoms, date of previous abdominal surgery, previous operation, indication for surgery, type of surgery, extra intestinal manifestation, comorbidity, preoperative weight and height, asa grade, presence of anal pathology, medications, preoperative investigations, surgeon details, pouch technical details, details of subsequent ileostomy reversal and complications, subsequent investigations, follow up and patient reported outcome.
Data is uploaded by the clinical team caring for the patient as part of an audit database.Research programme
The database is primarily for audit purpose. This database aims to improve standards in ileal pouch surgery through a process of continuous national audit of activity and outcome in an observational registry. Following ethical approval the database will be used for research purposes for epidemiological and surgical research.
Research database title
UK Ileal pouch registry
Establishment organisation
Dendrite Clinical Systems Limited
Establishment organisation address
The Hub, Station Road
Henley-on-Thames
Oxfordshire
RG9 1AY