UK Black African and Caribbean cancer survivorship experiences (Vs1)
Research type
Research Study
Full title
The exploration of cancer survivorship experiences regarding support and care continuity following the completion of initial cancer treatment among Black African and Caribbean (BAC) individuals and their lay caregivers/significant other in the United Kingdom (UK).
IRAS ID
248529
Contact name
KIARA LEWIS
Contact email
Sponsor organisation
University of Huddersfield
Clinicaltrials.gov Identifier
STH20619, Sheffield Teaching Hospital Project Registration
Duration of Study in the UK
1 years, 10 months, 0 days
Research summary
Title: The exploration of cancer survivorship experiences regarding support and care continuity following the completion of initial cancer treatment among Black African and Caribbean (BAC) individuals and their lay caregivers/significant other in the United Kingdom (UK).
Cancer treatment may emotionally and physically affect individuals and their relatives/significant others. At the end of initial cancer treatment, most people surviving cancer express happiness for the completion of the treatment, while some express fear of abandonment as they may no longer have regular contact with health professionals and may not be aware of available support for self-management and care continuity. A national survey on cancer patient experiences in the UK reported that the Black African and Caribbean (BAC) cancer patients have poor health care experiences due to lack of referrals to appropriate cultural support services. In addition,UK BAC individuals surviving cancer and their lay caregivers have been reported to have low uptake of cancer support services. Past UK cancer studies involving BAC people mainly focused on their uptake of cancer screening or treatment services. This suggests the need to specifically explore this group’s experiences of support and care continuity after initial cancer treatment in order to provide answers to:
• What are the experiences of support and care continuity among UK BAC individuals after initial cancer treatment?
•What are the experiences, challenges and support needs of UK BAC cancer lay caregivers/significant others?
Participants will be recruited through the NHS and will include UK BAC individuals who have or about to complete initial cancer treatment and their lay caregivers/significant others aged 18 years old and above. Data will be collected through the use of visual aids and personal interviews that will be recorded with the person's voluntary permission. All the information gathered will be treated in confidence. Research participants will also be informed of the findings.REC name
Yorkshire & The Humber - Bradford Leeds Research Ethics Committee
REC reference
19/YH/0038
Date of REC Opinion
12 Feb 2019
REC opinion
Favourable Opinion