Tourette Syndrome GOSH
Research type
Research Study
Full title
The impact of executive functioning and time processing abilities on adaptive functioning in children with Tourette Syndrome
IRAS ID
220775
Contact name
Daniel Stark
Contact email
Sponsor organisation
UCL Institute of Child Health
Duration of Study in the UK
2 years, 4 months, 18 days
Research summary
Our group at Great Ormond Street Hospital currently sees over 100 children with Tourette’s Syndrome (TS) and related neurodevelopmental conditions (e.g. Attention Deficit Hyperactivity Disorder, ADHD; Autism Spectrum Disorder, ASD) every year. Many of these children are markedly affected by difficulties in adaptive functioning. Adaptive functioning includes a set of skills crucial for everyday living, and for achieving independence. Some examples of adaptive functioning include communication, engaging in social relationships, and activities of daily living. Adaptive functioning deficits can be extremely debilitating, affecting children’s ability to navigate a wide-range of everyday tasks. In our research we seek to better understand the causes of these difficulties.\n\nResearch has suggested that planning and time-perception may be difficult for children with TS, and these skills may relate to adaptive functioning.\n\nWe want to know whether adaptive functioning is affected by problematic planning and time-perception in these children. Planning falls under the category of executive functioning (EF), which is an umbrella term that includes several thinking processes like reasoning, planning, and attention. As such, we wondered to what extent adaptive functioning is impacted by difficulties in time processing and executive functioning. This is of clear clinical interest because by identifying the factors that have the greatest impact on adaptive functioning, existing rehabilitation strategies, including cognitive rehabilitation, can be used to develop those skills and produce generalised treatment gains on adaptive functioning.\n
REC name
London - Bloomsbury Research Ethics Committee
REC reference
17/LO/1297
Date of REC Opinion
31 Aug 2017
REC opinion
Further Information Favourable Opinion