The UK-MPN-MF Registry
Research type
Research Study
Full title
The UK Myeloproliferative Neoplasms Registry for Myelofibrosis
IRAS ID
263036
Contact name
Nauman Butt
Contact email
Sponsor organisation
The Clatterbridge Cancer Centre NHS Foundation Trust
Duration of Study in the UK
2 years, 11 months, 31 days
Research summary
Myelofibrosis (MF) is a rare disorder of the bone marrow, causing scarring and abnormal blood cell production. Symptoms can include enlarged spleen, bone pain, itching, night sweats, pain, weight loss, tiredness and weakness. Treatment options are varied and aimed at controlling symptoms and slowing progression. There is currently limited data about treatment and outcomes of MF patients in the UK, being one of the few major European countries without a national MF registry. This study aims to improve understanding of the diagnosis, management and outcomes for UK patients with MF for comparison with those reported by other national registries.
REC name
North West - Liverpool Central Research Ethics Committee
REC reference
19/NW/0683
Date of REC Opinion
8 Jan 2020
REC opinion
Further Information Favourable Opinion