The Superwatch Study V2

  • Research type

    Research Study

  • Full title

    The Superwatch Study: Co-designing a wearable for children living with fatigue

  • IRAS ID

    306388

  • Contact name

    Amberly Brigden

  • Contact email

    amberly.brigden@bristol.ac.uk

  • Sponsor organisation

    University of Bristol

  • Duration of Study in the UK

    0 years, 6 months, 1 days

  • Research summary

    The aim of this research is to co-design a digital tool to support energy management in primary school children (7-11yrs) that experience fatigue related to a physical health condition such as chronic fatigue syndrome, long covid or cancer related fatigue. We will consult with key stakeholders: children living with fatigue, their parents/guardians, school staff and the healthcare professionals involved in their care.

    Part 1: Qualitative interviews

    We will undertake qualitative interviews with the participant groups (i.e., healthcare professionals, school staff, parents/guardians, and children) independently to understand their experiences of managing fatigue and how technology could support fatigue management. The interviews will last approx. 1 hour for adults and 30 mins for children. Interviews will take place at either a fatigue clinic, participants’ homes, the university, or online via Zoom. Participants will also be given the option to do shorter interviews.

    Part 2: Co-design workshops

    We will undertake a series of co-design workshops with each of the participant groups (each workshop will be around 1.5 hours). The first workshop will encourage blue sky thinking inspired by Magic Machine methodology (Anderson & Wakkary, 2019). This approach utilises imagination and crafting to facilitate discussion and the exploration of ideas using ‘Magic Machines’ to address issues which are not restricted by what is possible and are instead speculative and hypothetical (Andersen & Rietveld, 2013; Andersen & Wakkary, 2019). These workshops will explore participants’ perspectives on future digital solutions to address current challenges in managing fatigue in young children. Subsequent workshops will use creative activities to design and develop early low fidelity prototypes of components of a multi-user digital system.

    Workshops will take place at the NHS clinic, the University or at a local community centre. An online format of the workshops will be available to reduce the burden of travel or for restrictions due to the COVID-19 pandemic.

  • REC name

    South East Scotland REC 01

  • REC reference

    22/SS/0031

  • Date of REC Opinion

    16 May 2022

  • REC opinion

    Further Information Favourable Opinion