The Social Perspective on Living Well with Dementia version 3
Research type
Research Study
Full title
The Social Perspective on ’Living Well with Dementia’: a Longitudinal Multi-cohort Study
IRAS ID
146169
Contact name
S Moore
Contact email
Sponsor organisation
South Essex Partnership University NHS Foundation Trust
Research summary
The ‘Living Well with dementia’ National Dementia Strategy (DoH, 2009) has reasserted the need to consider the needs of people with dementia beyond clinical and immediate social care needs. \nExisting qualitative studies have considered the barriers and problems people with dementia have encountered during their dementia ‘career’ (Steeman, 2005; Thein, 2011) in which they recognise that the issues encountered change over time and as care needs/circumstances change. The focus of many studies on the start and end stages of the career with dementia, look at these as ‘events’ without taking into account that dementia is part of the longer ‘story’ of the individual. The proposed research seeks to address a significant ’knowledge’ gap which previous research has failed to address, namely how living with dementia impacts upon social interests and hobbies, as the disease progresses.\nThe study seeks to understand how people with dementia maintain social interests and hobbies, throughout their dementia career. This focus will allow a broader understanding of what it means to live well with dementia. \nThe research is largely qualitative in nature and involves interviewing 150 people in total. This will include 75 people with dementia who are expected to be in the early stages of the progression of the disease (a cohort of recently diagnosed individuals) and 50 primary carers of people with advanced stage dementia (Cohort 2). \n
REC name
East of England - Cambridgeshire and Hertfordshire Research Ethics Committee
REC reference
14/EE/0104
Date of REC Opinion
28 Apr 2014
REC opinion
Further Information Favourable Opinion