The relationship between health markers and neurodegenerative diseases

  • Research type

    Research Study

  • Full title

    Understanding the relationship between physiological & behavioural indicators and neurodegenerative diseases

  • IRAS ID

    333894

  • Contact name

    Max Beech

  • Contact email

    max@earlia.org

  • Sponsor organisation

    Maxed Labs Ltd

  • Duration of Study in the UK

    0 years, 11 months, 19 days

  • Research summary

    This study asks participants to download an app which will explore whether diseases like Alzheimer's can be predicted by analysing their health data.

    --Why are we doing it?--
    This study is a part of our work to research the relationship between neurodegenerative diseases such as Alzheimer's and physiological & behavioural indicators such as gait, heartbeats and sleeping patterns. By better understanding this relationship, we can then work to investigate whether these indicators could be used as a predictor of the diseases.

    --How much effort is it?--
    Participating will only take 10 minutes of your time, but your support is crucial to our work:
    1. Download our early-access app, free
    2. Agree to the study's terms, share the health data you want and fill in some information about yourself
    3. That's it! The app will securely sync the data as you take a well-earned nap

    --How will my data be used?--
    Your data will be anonymised, combined with other participants' data and then used to help train our AI model. By sharing your health data already being collected by your phone, we will be able to understand how these might change as someone develops neurodegenerative diseases such as Alzheimer's.

    --How will my data be protected?--
    Health data will be stored anonymously and securely on our servers. Personally identifiable information will not be stored unless you provide explicit permission and this form does not request this consent.

    As a participant, you will be required to grant permissions for data collection, and allow the app to analyse your health data using Earlia's AI model. By supporting this research, you will be contributing to our goal of early detection of neurodegenerative diseases.

  • REC name

    London - South East Research Ethics Committee

  • REC reference

    23/LO/0989

  • Date of REC Opinion

    18 Dec 2023

  • REC opinion

    Unfavourable Opinion