The psychosocial implications of living and coping with Sickle Cell

  • Research type

    Research Study

  • Full title

    Exploring the psychosocial implications of living and coping with Sickle Cell Crisis: An Interpretative Phenomenological Analysis

  • IRAS ID

    149523

  • Contact name

    Helen Poole

  • Contact email

    h.m.poole@ljmu.ac.uk

  • Sponsor organisation

    Liverpool John Moores University

  • Research summary

    In this study I will be exploring painful sickle cell crisis in depth in an attempt to examine the effects that these crises have on both the individual’s ability to function and their coping styles. I will use Interpretative Phenomenological Analysis, a qualitative method, that will enable me to grasp the experiential world of the research participant.I will be carrying out 8-10 interviews that will last approximately one hour in order to gain rich qualitative data surrounding sickle cell disease and associated painful crises. These interviews will take place in a consultation room in the Roald Dahl Treatment Centre in the Royal Liverpool University Hospital. Individuals will be eligible to take part if they are 18 and over and speak English. They must also have experienced a painful crisis. On the other hand, individuals who are younger than 18 years old, do not speak English and have major co-morbid disorders will not be suitable for participation in this study. It is evident that there appears to be a significant lack of knowledge surrounding sickle cell disease within health services in the UK. Therefore, such research will provide professionals with a greater knowledge base from which they can practice, thus enhancing patient outcomes.

  • REC name

    East Midlands - Derby Research Ethics Committee

  • REC reference

    14/EM/0198

  • Date of REC Opinion

    2 Jun 2014

  • REC opinion

    Further Information Favourable Opinion