The psychological wellbeing of a TYA Cancer population during COVID-19
Research type
Research Study
Full title
The Psychological Wellbeing of a UK Teenage and Young Adult Cancer Population during the COVID-19 Pandemic – A longitudinal analysis of distress, resilience, personal strength and perceived impact.
IRAS ID
285244
Contact name
Clare Jacobson
Contact email
Sponsor organisation
Guy's and St Thomas' NHS Foundation Trust
Duration of Study in the UK
0 years, 6 months, 0 days
Research summary
The teenage and young adult (TYA) cancer population (aged 16-24 years at time of diagnosis) are a group facing unique challenges separating them from their peers. This leads to psychological distress as well as to growth and resilience.
Understanding their psychological experience during the covid-19 epidemic, particularly for specific cancer groups, treatment
stages and treatment type is important for future service provision, for example if covid-anxiety prevents patients attending hospital it could impact treatment compliance and survival. Longitudinal data that follows the national covid strategy will inform psychological provision.Patients known to TYA services in the UK will be invited to complete an online survey seeking qualitative and
quantitative data on their psychological experience. They will be asked to follow-up by completing this again, once after 2 months and again after a further 3 months.The data will give an overview of the resilience, distress and relational impact covid-19 has had for TYA cancer patients at various stages of disease and treatment. This data is vital to understanding later psychological effects.
REC name
North East - Newcastle & North Tyneside 2 Research Ethics Committee
REC reference
20/NE/0190
Date of REC Opinion
23 Jul 2020
REC opinion
Unfavourable Opinion