The Pain Management Registry Version 1
Research type
Research Database
Full title
The Pain Management Registry
IRAS ID
145123
Contact name
Hannah Twiddy
Contact email
Research summary
The Pain Management Registry Version 1
REC name
North West - Haydock Research Ethics Committee
REC reference
14/NW/0296
Date of REC Opinion
10 Jun 2014
REC opinion
Further Information Favourable Opinion
Data collection arrangements
The Pain Management Registry (PMR) is an innovative prospective and retrospective open-ended study conducted by a network of clinicians and researchers involved with pain management at The Walton Centre NHS Foundation Trust. Participants will be patients with a chronic pain diagnosis being assessed for either a pain management programme (PMP) or neuromodulation. The study aims to (i) improve the understanding of chronic pain (ii) improve management and treatment options for chronic pain (iii) evaluate the effectiveness of current management and treatment of chronic pain (iv) facilitate the recruitment of suitable candidates for future research studies. Demographic and psychosocial data collected at initial assessment and a number of specified follow-up time points (according to PMP/Neuromodulation schedules) will be entered onto and held on a formally registered database (the PMR). The registry will include cross-matching to link those participants who have received multiple numbers of pain management interventions within the hospital.
Research programme
Following a literature search there was no evidence of a formal chronic pain registry. Therefore, the Pain Management Registry is much needed to support this patient group and to facilitate future studies by researchers. Although results will not be of direct clinical significance to chronic pain patients involved in the registry, we hope that obtaining this information will assist us in determining more effective chronic pain treatment strategies in the future. Furthermore, involvement in other research studies resulting from registry participation may also help establish effective treatment options. There is still more to understand about chronic pain and effective treatments. Therefore, this study is essential for continuing research into options working to improve people’s quality of life living with a chronic pain condition. The start-up and development of the registry and associated software, research protocol and methodology has been sponsored by the Walton Centre NHS Foundation Trust. It is hoped that additional funding from external sources will be established in the future to support specific projects thereby maximising the opportunity for this data to contribute to the research progression for chronic pain.
Research database title
The Pain Management Registry Version 1
Establishment organisation
The Walton Centre NHS Foundation Trust
Establishment organisation address
Lower Lane
Fazakerley
Liverpool
L9 7LJ