The IMPPACT study
Research type
Research Study
Full title
Improving work participation in people with sickle cell disease, cystic fibrosis, severe asthma, or inflammatory bowel disease: A mixed methods feasibility study. (The IMPPACT study).
IRAS ID
343874
Contact name
Ira Madan
Contact email
Sponsor organisation
Guy's and St Thomas' NHS Foundation Trust
Duration of Study in the UK
0 years, 9 months, 26 days
Research summary
We want to find out how people with certain long-term health conditions experience paid work, if they wish to increase their work participation, and what support they need from their clinical teams to do so. Increasing ‘work participation’ includes taking on additional hours, duties or responsibilities, or gaining employment. This will enable us to develop appropriate work-related support for people with these conditions.
We will include people with four conditions: sickle cell disease, cystic fibrosis, severe asthma, and inflammatory bowel disease.
What is our research plan?
Part 1: Review the existing work support for people with long-term health conditions to develop a summary of what works for whom and in what setting.
Part 2: Establish a national group of clinicians who prescribe the new medicines for patients with the four conditions. We will recruit participants for parts 3 and 4 through these clinicians.
Part 3: Invite patients to complete an anonymous questionnaire to provide information about their employment histories, their views about work, and work support.
Part 4: Talk with patients to explore their experiences in more detail to identify what type of work-related support, from whom, and when, would be most useful.
Part 5: Use the information we have collected to develop a strategy for clinicians to provide relevant and individualised work support. This will be refined through discussion with patients and clinical teams. We will apply for future funding to test whether this intervention helps to improve patients’ experiences with work.REC name
North East - York Research Ethics Committee
REC reference
24/NE/0197
Date of REC Opinion
28 Oct 2024
REC opinion
Favourable Opinion