The implementation of electronic patient reported outcomes in clinic

• Research type

  Research Study

• Full title

  The use of volunteers to implement electronic patient reported outcomes (ePRO) in lung cancer patients at The Christie

• IRAS ID

  200859

• Contact name

  Corinne Faivre-Finn

• Sponsor organisation

  University of Manchester

• Duration of Study in the UK

  0 years, 3 months, 14 days

• Research summary

  The purpose of the study is to improve the way we collect information about the symptoms of patients during or after their lung cancer treatment.

  A few questionnaires called ‘Patient Reported Outcomes’ have been developed that allow patients to describe and record their own symptoms. Data collected directly from the patient has the potential to reduce subjective interpretation of experiences by clinicians, errors during transfer of information, and also can pick up symptoms sooner.

  Capturing this data electronically rather than on paper will dramatically improve the efficiency of data collection and allow easier interpretation of the results. However, some patients may have difficulty completing forms electronically on a computer or touch-screen device and may require assistance.

  This is an open, single-site, non-randomised questionnaire based study that will allow us to understand whether volunteers are required to implement electronic patient reported outcomes (ePRO) in lung cancer clinics. It will also help us understand which particular sub-group of patients are more likely to require assistance, and if help is given, does this have an impact on completion rate at subsequent visits. It will also be useful to understand patients’ satisfaction with the introduction of ePRO, therefore patients will complete paper questionnaires to evaluate their experiences.

• REC name

  North of Scotland Research Ethics Committee 2

• REC reference

  16/NS/0046

• Date of REC Opinion

  22 Apr 2016

• REC opinion

  Favourable Opinion