The impact of long COVID on people living with pre-existing LTC v1.0

  • Research type

    Research Study

  • Full title

    Exploring the experiences of adults living with multiple pre-existing long-term conditions and long COVID to understand their rehabilitation needs

  • IRAS ID

    327830

  • Contact name

    Lucy Gardiner

  • Contact email

    lg317@leicester.ac.uk

  • Sponsor organisation

    University of Leicester

  • Duration of Study in the UK

    0 years, 6 months, 30 days

  • Research summary

    Almost half of people have ongoing symptoms following COVID-19 (such as fatigue and feeling short of breath) that may affect their day-to-day lives (long COVID). Research to date suggests that education and exercise-based rehabilitation may improve symptoms and quality of life for some people living with long COVID.

    People living with two or more (multiple) pre-existing long-term conditions (LTC) (such as diabetes and asthma) are more likely to develop long COVID. But little is known about how long COVID impacts their health and well-being in particular and how best to support them.

    The aim of the research is to understand the impact of long COVID on people living with multiple pre-existing LTC and to identify their health and well-being needs.
    A sample of people living with long COVID and multiple pre-existing LTC (or their supporter) in Leicestershire will be recruited via local NHS long COVID services. Participants (or their supporter) will be asked to take photographs of things they feel represent or symbolise the impact of long COVID on their day-to-day lives across seven days. They will then be invited to a face-to-face, online or telephone interview (as preferred) to talk about their experiences, and health and well-being needs. The photographs will be used during the interview to support the participant to ‘tell their story’, and the interviewer’s understanding of their experiences and needs. Interpreting and translation services will be used where needed. Face-to-face interviews will be held in a local community site, participants’ homes or university site as preferred by the participant.

    It is hoped that the findings of this research will provide greater understanding of the impact of long COVID on people living with multiple pre-existing LTC and their rehabilitation needs.

    The research will be funded by the lead researcher’s Wellcome Trust doctoral fellowship grant.

  • REC name

    London - Harrow Research Ethics Committee

  • REC reference

    23/PR/1507

  • Date of REC Opinion

    16 Jan 2024

  • REC opinion

    Further Information Favourable Opinion