The genetic basis of heritable corneal disease

  • Research type

    Research Study

  • Full title

    An observational study of phenotype/genotype correlations of heritable corneal disease seen at Moorfields Eye Hospital

  • IRAS ID

    230753

  • Contact name

    Stephen Tuft

  • Contact email

    s.tuft@ucl.ac.uk

  • Sponsor organisation

    Moorfields Eye Hospital

  • Duration of Study in the UK

    2 years, 11 months, 31 days

  • Research summary

    Research Summary

    The aim of this study is to determine the genetic cause (the genotype) of various forms of inherited diseases of the anterior segment of the eye. This includes a combination of abnormalities of the cornea, conjunctiva, iris or lens. These results will be correlated with the clinical changes observed in affected individuals (the phenotype). This will provide insight into the mechanisms of disease in affected individuals as well as the pathways that control the normal development and structure of the anterior segment of the eye. These studies will be enhanced by laboratory-based investigations of cells cultured from affected individuals who have the gene change of interest. The use of cultured cells allows an assessment of the behaviour of the cells and potential therapeutic options.

    Summary of Results

    The cornea is the transparent window at the front of the eye. Disease of the cornea can lead to loss of transparency of the cornea, which can result in blindness. Some causes for corneal disease are inherited and caused by changes in the genetic make-up of individuals. These changes can be passed down in families. The purpose of this study was to look at the DNA extracted from blood of patients with inherited corneal disease to identify changes that cause these diseases. Our results have provided insights into the mechanisms of disease for two of the most common inherited corneal disease - keratoconus and Fuchs endothelial corneal dystrophy.
    For this study we recruited 378 patients. Three PhDs have been awarded based on the results of this research, and we anticipate several high quality publications will be submitted. The results have been passed on to patient interest groups. Insights from this work has also been the basis for ongoing studies.

  • REC name

    London - City & East Research Ethics Committee

  • REC reference

    17/LO/1671

  • Date of REC Opinion

    13 Nov 2017

  • REC opinion

    Further Information Favourable Opinion