The Bristol Archive Project
Research type
Research Study
Full title
The Bristol Archive: Creating a shared resource of recorded primary care encounters and linked data
IRAS ID
149351
Contact name
Rebecca K Barnes
Contact email
Research summary
The proposed work aims to create a dataset of recorded primary care appointments plus related data to be safely archived at the UK Data Archive for re-use by bona fide researchers. Following ethical approval and gaining fully informed consent from all participants, we plan to collect a locally representative sample of video-recorded GP-patient appointments across a range of GP practices in Bristol, as well as practice, GP and patient data that would enable a number of different research questions to be answered. The current research project will use a number of measures from this dataset to address associations between where a GP practice is located, individual patient characteristics, the nature of GP spoken recommendations for medical and nonmedical treatments and patient responses to those recommendations, and any links with subsequent patient adherence. 240 patients and 24 GPs will be recruited via 12 GP practices across deprived and affluent neighbourhoods. Data for this project will include video-recorded GP visits from unselected adult patents where a new medical or non-medical treatment is recommended (10 patients per GP). GP practice surveys, GP surveys (and checklists post-visit), patient survey data (pre-visit, post-visit and 10 days later) and patient record data (one month later) will also be collected. The primary outcome measure is patient-reported adherence to medical and/or non-medical treatment advice 10 days following the recorded appointment. An existing coding instrument will be adapted and subsequently used to code relevant communication between GPs and patients about treatment plans from written transcripts of the recorded appointments. Economic benefits of this work are immediate in terms of minimising the costs of data collection in projects re-using the archived data. The economic and health costs of patient non-adherence to treatment recommendations are considerable and any subsequent evidence-based communication training resulting from the project that proved effective would reap considerable rewards.
REC name
South West - Central Bristol Research Ethics Committee
REC reference
14/SW/0112
Date of REC Opinion
20 Jun 2014
REC opinion
Further Information Favourable Opinion