Supporting people with long-term conditions during COVID-19 [COVID-19]
Research type
Research Study
Full title
Supporting people living with a long-term condition during COVID-19: Hope in a crisis
IRAS ID
283172
Contact name
Andy Turner
Contact email
Sponsor organisation
Coventry University
ISRCTN Number
ISRCTN11868601
Duration of Study in the UK
1 years, 11 months, 15 days
Research summary
The Hope Programme is a digital, and face-to-face self-management programme for people living with and affected by a long term condition (LTC). The Hope Programme is linked to reduced depression and anxiety, and improved positive mental wellbeing, in cancer survivors (Martin et al, 2020), people living with multiple sclerosis (Anderson et al, 2016), and parents of children with autism (Martin et al, 2019).\nThe Hope Programme was developed by self-management experts at Coventry University. Several organisations including Macmillan Cancer Support, CLIC Sargent, and NHSE have sought help from Coventry University and H4C to digitalise the face-to-face Hope Programme for their clients/patients. \nWe urgently need to increase our understanding of the evolving self-management needs of these vulnerable groups during COVID-19. This will enable us to tailor the Hope Programme to provide tailored support.\nThis study has three aims. The first aim is to explore the management needs of people living with and affected by a long-term condition. The second aim is to adapt the Hope Programme to provide tailored support. The third aim is to test the usefulness of the Hope Programme for improving quality of life and other outcomes. \nParticipants will be referred to the study through several routes. Non NHS sources include social media, charities, social prescribing link workers and third sector organisations. NHS sources include secondary care, primary care, cancer clinics etc. The type of referment sources will depend on the organisation referring to the Hope Programme. \nConsent and outcome data will be collected via Qualtrics. Participants will be asked about their self-management needs in relation to the isolation measures, and will complete outcome measures, before being given access to the Hope Programme. Any COVID-19 specific modules will be added to the standard 6 session course. Participants will be followed up post course and at 6 and 12 months.\n
REC name
West Midlands - Black Country Research Ethics Committee
REC reference
20/WM/0160
Date of REC Opinion
11 Jun 2020
REC opinion
Further Information Favourable Opinion