Study to understand the
Research type
Research Study
Full title
To understand existing work practices and needs and to tailor the "MyPath" tool to achieve maximum impact at oncology outpatients
IRAS ID
326941
Contact name
Marie Fallon
Contact email
Sponsor organisation
University of Edinburgh
Clinicaltrials.gov Identifier
101057514, Horizon 2020 Grant Agreement Number
Duration of Study in the UK
5 years, 2 months, 17 days
Research summary
Cancer is a major public health and economic issue, and the burden it imposes is set to exponentially increase due to population growth and aging. This study protocol is part of a Horizon 2020-funded European project called ‘MyPath’. The main goal of MyPath is to develop, implement and evaluate digital patient-centred care pathways (PCCPs) with incorporated patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) for shared decision-making between people with cancer and professional carers in hospital setting. More specifically, MyPath combines PCCPs, PROMs, PREMs and treatment decision support incorporated in a user-friendly digital platform. Patient-centred care pathways are care plans tailored to an individual patient based on both clinical and patient-reported data. MyPath will collect information from the patient through digital questionnaires (via an app) in six core areas: pain, fatigue, nutrition, physical function, social function and psychological distress. This study will be a qualitative interview study with stakeholders (organisational leaders, managers, healthcare professionals, patients with cancer and their family carers) who will learn about MyPath and be shown early prototypes of MyPath (digital platform) but will not interact with MyPath digital platform because it is not complete at this stage in research.
MyPath is a digital tool to help patients communicate their symptom, psychological and social problems effectively to the oncology team in a systematic manner which the oncology team can then work with in routine clinical practice to address these issues with appropriate management plans. The outcome from this preliminary research (pilot study, Years 1-2) could help develop a better understanding of the needs of patients and clinicians to achieve improved patient-centered care alongside their already delivered tumor-centered care.
REC name
Wales REC 4
REC reference
23/WA/0193
Date of REC Opinion
3 Aug 2023
REC opinion
Further Information Favourable Opinion