Staff use of e-PROMs in Parkinson's clinic
Research type
Research Study
Full title
Use of digital technology in Parkinson’s disease clinics: A qualitative study of the staff perceptions.
IRAS ID
251006
Contact name
Emma Lane
Contact email
Sponsor organisation
Cardiff University School of Pharmacy & Pharmaceutical Science
Duration of Study in the UK
1 years, 0 months, days
Research summary
Digital data collection is becoming increasingly more popular in healthcare settings. Electronic collection of patient-reported outcome measures (e-PROMS) have been variously introduced to improve the collection of patient data within clinics. Advantages include the facilitation of data linkage with electronic health records and improved communications between clinical teams. The majority of studies of electronic devices in healthcare are of smart-device tools that support the collecting and analyzing of multiple Parkinson’s disease features remotely to improve diagnostics, or to support self-management of the condition.
Parkinson’s disease is a neurodegenerative movement disorder, affecting 1% of the population over 60. We have conducted initial studies to explore the acceptability of an e-PROM tool to people with Parkinson’s disease. However, an important part of refining the tool is to understand the needs of the healthcare professionals and any barriers to its effective use. One health board out of seven in Wales has used a smart device tool to collect patient-reported outcome measures in movement disorder clinics (Parkinson’s clinics), but at present we do not know how this data has been used in practice; whether is used to inform immediate clinical decision making and how it is applied by the movement disorder healthcare professionals.
We will conduct qualitative interviews with a sample of movement disorder healthcare professionals who are currently practicing as geriatricians, neurologists, pharmacists, physiotherapists, speech therapists, and Parkinson’s disease nurse specialists to explore their views on the use of digital technology to collect PROMS and the associated benefits and barriers. Interviews will be audio-recorded, allow us to create a script of exactly what has been said. The data will then be analysed to identify important themes in the views of the healthcare professionals.REC name
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REC reference
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