South London and Maudsley Biomedical Research Centre Case Register

  • Research type

    Research Database

  • IRAS ID

    326477

  • Contact name

    Robert Stewart

  • Contact email

    robert.stewart@kcl.ac.uk

  • Research summary

    South London and Maudsley Biomedical Research Centre Case Register

  • REC name

    South Central - Oxford C Research Ethics Committee

  • REC reference

    23/SC/0257

  • Date of REC Opinion

    1 Sep 2023

  • REC opinion

    Favourable Opinion

  • Data collection arrangements

    The SLaM BRC Case Register allows a wealth of information on people receiving mental health care from the South London and Maudsley NHS Foundation Trust to be used for research. It does this through a computer program called CRIS which removes information such as names and addresses so that researchers are not able to identify people from their record. There are also a series of other security measures to ensure confidentiality and to protect the information contained on the Case Register. The information itself includes in-depth details from the health record including mental health symptoms and the context in which these have occurred, as well as treatments received and outcomes. Information from the mental health record has been successfully linked to other data sources. Patients have been centrally involved in designing and overseeing the use of the Case Register since its development.

  • Research programme

    The purpose of the Case Register is to enable novel and effective research to be carried out into the causes of mental disorder as well as providing particularly important information on what happens to people with particular disorders – for example, how well they respond to treatment, and what treatments work best. The Case Register has been used by researchers for the last 15 years with great success and has been highlighted as an important national development in improving knowledge through studying information from health records. One example of research using this information resource has been studies which have demonstrated the high mortality and lowered life expectancy on average in people with serious mental health problems. Ongoing studies using linked records from general hospitals are providing valuable opportunities to investigate physical health outcomes more specifically in order that overall health inequalities can be identified and corrected.

  • Research database title

    South London and Maudsley Biomedical Research Centre Case Register

  • Establishment organisation

    South London and Maudsley NHS Foundation Trust

  • Establishment organisation address

    Bethlem Royal Hospital

    Monks Orchard Road

    Beckenham

    BR3 3BX