Social care for people with young onset dementia: The DYNAMIC study V1
Research type
Research Study
Full title
Social care planning and provision for people with young onset dementia and their families: current practice and resources for improvement.
IRAS ID
329325
Contact name
Jan R Oyebode
Contact email
Sponsor organisation
University of Bradford
Duration of Study in the UK
2 years, 6 months, 0 days
Research summary
We aim to identify issues, challenges and examples of good practice, and prioritise and produce recommendations and resources to improve social care for people with young onset dementia (dementia starting under 65 years) and their families.
Why are we doing this?
Social care needs of people with young onset dementia and their families are very different from those of older people. Our recent study, the Angela project, identified social care and support in young onset dementia as central to quality of life. However, this area is seldom well addressed and hardly researched. People directly affected by young onset dementia are keen for us to take this forward.
What do we plan to do?
The project will last for 30 months.
Over the first half, we will:
Gather accounts from 25 people with young onset dementia and/or their family/friend carers to find out about social care needs, experiences and support they would prefer.
Carry out a national survey of staff with a role in social care, to find out about their awareness, knowledge and practice.
Over the second half, we will:
Present our findings to ‘stakeholders’ via a workshop and agree on priority improvements.
Produce recommendations and resources that address these priority issues.
Where will the study take place and who will be able to take part?
People living with or supporting someone with young onset dementia in England will be eligible to take part in a face to face or online interview. We will select from those who express an interest to make sure we hear diverse stories from a wide range of people.
Staff with a role in social care will be able to take part in the online survey from anywhere in England.
This application relates to the first half of the study.
REC name
Social Care REC
REC reference
23/IEC08/0034
Date of REC Opinion
20 Sep 2023
REC opinion
Further Information Favourable Opinion