Self-help To Actively Manage a Parastomal hernia - STAMP
Research type
Research Study
Full title
Co-production of a self-management intervention to improve the health and wellbeing and quality of life of people with a parastomal hernia
IRAS ID
302353
Contact name
G Hubbard
Contact email
Sponsor organisation
University of Highlands and Islands
Duration of Study in the UK
1 years, 5 months, 28 days
Research summary
About 130,000 people in the UK have a stoma, and approximately half of these cope living with a parastomal hernia (A bulge or hernia around the stoma). Currently no interventions other than surgery exist to help people live with, and manage their hernia. It is essential that people with experience of living with a parastomal hernia are involved in designing future non-surgical interventions, and that is what this research aims to do.
We aim to :
1. Recruit 20 adults in Scotland (Raigmore hospital, Inverness) and England (St Mark’s hospital, London) who’ve had a stoma formed and who now have a parastomal hernia.
2. Conduct in-depth interviews to find out about their experiences of living with a parastomal hernia.
3. Conduct a UK-wide survey of 500 people with living with a parastomal hernia. The survey will be created when we have an in-depth understanding of the issues patients face from their interviews.
4. Meet with our UK wide Patient Advisory Group to discuss the findings and co-design a self-management intervention.
We will use mixed methods to gain as much knowledge from patient experience in the 4 stages stated. The aim of the research is to improve the quality of life of people living with a parastomal hernia by co-producing a self-management intervention with patients with the knowledge and experience of living with this.Intervention development co-produced with patients
Previous work suggests that parastomal hernias create a wide variety of issues, and that patients are given conflicting advice. We will use in-depth interviews to establish the problems of living with a bulge around a stoma, and what patients want to support them to self-manage. We will meet with our UK-wide patient advisory group following the data analysis of interviews, and survey to define the main issues, and needs of this patient group.REC name
East Midlands - Derby Research Ethics Committee
REC reference
21/EM/0248
Date of REC Opinion
21 Oct 2021
REC opinion
Further Information Favourable Opinion