SCAD Recovery

  • Research type

    Research Study

  • Full title

    Recovery from Spontaneous Coronary Artery Dissection: design and development of a recovery intervention and the development of a Patient Reported Outcome Measures (PROM) questionnaire.

  • IRAS ID

    328660

  • Contact name

    Lis Neubeck

  • Contact email

    l.neubeck@napier.ac.uk

  • Sponsor organisation

    Edinburgh Napier University

  • Duration of Study in the UK

    1 years, 2 months, 30 days

  • Research summary

    Spontaneous coronary artery dissection (SCAD) is increasingly recognised as an important cause of myocardial infarction (MI). Despite this, there are no recovery programmes tailored for SCAD survivors, who are mainly women, and typically younger than most Acute Coronary Syndrome (ACS) survivors. Cardiac Rehabilitation (CR) in the UK is often a nurse-led intervention to improve recovery from cardiac events, but the participants are mostly male and aged in the mid-60s. This profile means that SCAD survivors do not receive tailored, age or sex appropriate support, nor is the advice relevant to SCAD. Consequently, there is an urgent need to develop and evaluate SCAD recovery programmes. The overall objective of this project is to design a safe and effective recovery programme for SCAD survivors that can be quickly scaled to be offered to all survivors of SCAD in the UK. Concurrently, we aim to work with this population to develop and test a psychometrically valid patient reported outcome measure for SCAD.

  • REC name

    West Midlands - South Birmingham Research Ethics Committee

  • REC reference

    23/WM/0169

  • Date of REC Opinion

    2 Aug 2023

  • REC opinion

    Further Information Favourable Opinion