Safety monitoring of Acoramidis in Subjects with ATTR-CM

  • Research type

    Research Study

  • Full title

    An Open-Label Extension and Safety Monitoring Study of Acoramidis (AG10) in Participants with Symptomatic Transthyretin Amyloid Cardiomyopathy Who Completed the Phase 3 ATTRibute-CM Trial (AG10-301)

  • IRAS ID

    302733

  • Contact name

    Julian Gillmore

  • Contact email

    julian.gillmore@nhs.net

  • Sponsor organisation

    Eidos Therapeutics, Inc.

  • Eudract number

    2020-005643-22

  • Clinicaltrials.gov Identifier

    NCT04988386

  • Clinicaltrials.gov Identifier

    133574, IND Number

  • Duration of Study in the UK

    6 years, 9 months, 0 days

  • Research summary

    Transthyretin amyloid cardiomyopathy (ATTR-CM) is a life-threatening disease characterised by progressive heart
    failure. Acoramidis is a medication under development for the treatment of ATTR-CM. This study will evaluate the long-term safety and tolerability of acoramidis in the context of background heart failure therapy. The study is planned to involve up to 632 participants who have symptomatic ATTR-CM and who have completed the ATTRibute-CM study with acoramidis or placebo through month 30. This is an Open Label Extension (OLE) study. There is only 1 treatment group. All participants will receive 712 mg of acoramidis (equivalent to 800 mg of acoramidis hydrochloride (HCl)) by taking 2 pills twice a day. There are two parts to the study. Part 1: ‘Treatment period’ approx. 60 months long. Part 2: ‘Follow-up period’ which has one visit approx. 30 days after participants’ last dose of study medicine. Treatment period and follow-up period will involve a total of 13 visits. After the first visit, participant visits will be at Month 1, 6, and every 6 months until Month 60. These visits will last approximately 2 hours. Participation is expected up to 61 months. Participants will undergo various assessments at each visit including; medical and surgery history, medical assessment of their heart condition, answering 2 questionnaires, blood and urine tests and a physical examination including weight, height, temperature, heart rate, blood pressure, breathing rate electrocardiogram (ECG). The study doctor will also review previous/current medications. The primary endpoints are treatment-emergent serious adverse events (SAEs) and AEs, AEs leading to treatment discontinuation, abnormal physical exam findings, abnormal vital signs, abnormal electrocardiogram (ECG) parameters, and changes in clinical safety laboratory parameters of clinical relevance. Up to 50 participants can enrol in a cardiac magnetic resonance (CMR) substudy which would involve having up to 6 CMR scans between baseline and month 60.

  • REC name

    Wales REC 1

  • REC reference

    21/WA/0307

  • Date of REC Opinion

    22 Oct 2021

  • REC opinion

    Further Information Favourable Opinion