Saans: COPD Health
Research type
Research Study
Full title
Saans: COPD Health - Co-development of a culturally adapted pulmonary rehabilitation programme to increase access, engagement and completion for South Asian people with COPD.
IRAS ID
341059
Contact name
Amy Blakemore
Contact email
Sponsor organisation
University of Manchester
Duration of Study in the UK
1 years, 2 months, 31 days
Research summary
Background
South Asians are the largest ethnic minority group in the United Kingdom (UK). About 1.3% of South Asians in the UK live with a long-term lung condition called Chronic Obstructive Pulmonary Disease (COPD). There is no cure for COPD, but symptoms can be managed using Pulmonary Rehabilitation (PR), which is a group programme consisting of education about COPD, supervised exercise, and behaviour change.Increasing equality in access, uptake, and engagement with PR is a national priority. However, we know that South Asian people are still less likely to be offered the chance to attend PR when compared to White British people, and those who do attend are less likely to complete the programme.
What do we want to achieve?
We aim to understand why South Asian people living with COPD are less likely to be referred, attend, and complete PR. We will work together with South Asian people with COPD to develop a tailored PR programme that will suit their needs.How will we achieve this?
Over 12 months we will interview South Asian people living with COPD to understand any barriers they currently face in attending PR and think with them about what could be done differently to overcome these barriers. We will hold focus groups with healthcare professionals and key informants too.Then we will work with patients, professionals, and key informants at a one-day consensus event to agree a template for a PR programme, guidelines for referrers, and accompanying plan for community engagement, that has potential to increase PR access, engagement, and completion for South Asian people.
We will recruit people to take part in this research from NHS PR services, primary care, community organisations, and using social media.
Who is funnding this research?
This project is funded by the National Institute for Health Research, Research for Patient Benefit Programme (RfPB).REC name
East of England - Cambridge Central Research Ethics Committee
REC reference
24/EE/0147
Date of REC Opinion
25 Jul 2024
REC opinion
Further Information Favourable Opinion