RAABU Study
Research type
Research Study
Full title
Barriers to accessing information resources for Rheumatoid Arthritis (RA) and their impact on the management of RA among South Asian Urdu-speaking patients living in the UK.
IRAS ID
337671
Contact name
Jenny Humphreys
Contact email
Sponsor organisation
University of Manchester
Clinicaltrials.gov Identifier
n/a, n/a
Duration of Study in the UK
2 years, 0 months, 15 days
Research summary
Rheumatoid arthritis is a condition where the body’s defence system attacks its own joints, causing swelling and damage. Currently, there is no cure for rheumatoid arthritis, and the only treatment is the management of its condition. Therefore, understanding about the disease is important. However, some people, especially those who speak languages other than English or come from different backgrounds, struggle to understand it. This can make it harder for them to get the help they need and affects their overall health. This study will understand South Asian patients who speak Urdu and have rheumatoid arthritis in Manchester, UK. The study will explore and learn about their problems while getting information about rheumatoid arthritis. This will help create better resources in the future that meet their needs. The study will help them be more involved in the decisions about their health, manage their condition, and improve their lives.
The study is a qualitative study that involves semi-structured interviews. This means asking patients questions. This will allow patients to freely share their thoughts. They will talk about their experience using information about rheumatoid arthritis. The interview will be conducted once and will last around 1 hour and 30 minutes.
Patients will be chosen from the Kellgren Centre of Rheumatology at Manchester University NHS Foundation Trust (MFT). The patients who can take part include:
- Need to be over 18 years old
- Have Rheumatoid arthritis
- Speak Urdu,
- Already taking medicine for it
- Have been to the Kellgren Centre of Rheumatology MFT, Manchester, UK.This study is part of a PhD project at the University of Manchester funded by the National Institute for Health and Care Research (NIHR) and Biomedical Research Centre (BRC).
REC name
North West - Preston Research Ethics Committee
REC reference
24/NW/0194
Date of REC Opinion
25 Jun 2024
REC opinion
Further Information Favourable Opinion