Quality of life for children with intractable epilepsy

• Research type

  Research Study

• Full title

  Cambridge London questionnaire to assess the quality of life in all the children with epilepsy aged 1-3 years and those over 3 years with epilepsy and severe intellectual disability

• IRAS ID

  148355

• Contact name

  Alasdair Parker

• Duration of Study in the UK

  0 years, 7 months, 0 days

• Research summary

  We want to pilot the 'Cambridge London Quality of Life questionnaire' for children with severe epilepsy. The purpose of this study is to validate this questionnaire by testing intra and inter rater variability. We are planning to choose a cohort of children who will be going for ketogenic diet (special dietary treatment for intractable epilepsy). We will ask their parents to fill in this questionnaire while these children are getting assessed for this diet. They will be asked to fill in this questionnaire again in 6 weeks time just before the diet is started. This will hence enable us to verify the inter (both parents) and intra (same parent filling the questionnaire in twice 6 weeks)rater variability.

• REC name

  London - Bloomsbury Research Ethics Committee

• REC reference

  15/LO/0677

• Date of REC Opinion

  14 May 2015

• REC opinion

  Favourable Opinion