Psychopathology and Burden In Dementia Caregivers: CARING Study

  • Research type

    Research Study

  • Full title

    Psychopathology and Measures of Burden of Care in Primary Caregivers to Non-Institutionalised Patients with Alzheimer's Disease: A European Comparative Study of Practice and Outcomes between Spain and the United Kingdom

  • IRAS ID

    205574

  • Contact name

    Mustabshira Qayyum

  • Contact email

    mustabshira.qayyum@swlstg-tr.nhs.uk

  • Sponsor organisation

    South West London & St George's Mental Health NHS Trust

  • Duration of Study in the UK

    0 years, 7 months, 1 days

  • Research summary

    The impact of dementia extends beyond the individual with the condition and can affect the emotional and physical wellbeing of those caring for them.

    The present study aims to investigate the impact of caring for somebody with dementia on the mood and quality of life of the caregiver. To this end, we will recruit carers via Alzheimer’s Society support groups and administer a range of questionnaires. The questionnaires will examine depression and anxiety amongst carers, as well as the burden they perceive they are under and the support they feel they gain from other friends/family members. The study will also characterise the demographic profile of those providing care.

    The results of the study will be valuable in their own right, providing insight into the psychological effects of providing care for somebody with dementia. They will also be used in a comparative analysis with pre-existing data from a similar study completed in Spain. This will shed light on cross-cultural differences in the provision of informal care.

  • REC name

    London - South East Research Ethics Committee

  • REC reference

    17/LO/1887

  • Date of REC Opinion

    23 Nov 2017

  • REC opinion

    Unfavourable Opinion