Prime-Parkinson Cross-sectional Study
Research type
Research Study
Full title
A cross-sectional study of patients with parkinsonism and their caregivers
IRAS ID
274299
Contact name
Emma Tenison
Contact email
Sponsor organisation
University of Bristol
Duration of Study in the UK
1 years, 6 months, 1 days
Research summary
We know that having Parkinson’s disease (PD) can have a negative impact on quality of life. Having other health problems, such as depression or memory problems, as well as PD has also been linked to a worse quality of life. People with PD are also more likely to be admitted to hospital then people without PD. As PD progresses, many people will need the help of a caregiver. Often this care is provided by friends or family members who are not paid for the care and support they give. Being a caregiver can be stressful and put a strain on the caregiver's own physical and mental health.
We would like to understand the needs of people with PD (and other related conditions such as Lewy body dementia), who are cared for by a specialist at the Royal United Hospital in Bath, in terms of their stage of disease, what symptoms bother them and what other health problems they experience alongside their PD. We will ask participants to complete questionnaires on one occasion only. We also hope to find out about the help which people with PD receive, particularly from unpaid caregivers, such as family and friends. We will collect information about the experiences of unpaid caregivers, how caring impacts upon their quality of life and what strategies they use to cope with their role.
It is important for us to understand the needs of people with PD and their caregivers so that we can develop better ways to look after these groups. In the future we plan to use the information from this study to help us design and test out a new approach to caring for people with PD and supporting caregivers of people with PD.
REC name
London - Brighton & Sussex Research Ethics Committee
REC reference
20/LO/0499
Date of REC Opinion
15 Apr 2020
REC opinion
Unfavourable Opinion