Power Up for Parents: A pilot study
Research type
Research Study
Full title
Power Up for Parents: A pilot study, promoting parental involvement in shared decision making through technology
IRAS ID
236277
Contact name
Shaun Liverpool
Contact email
Sponsor organisation
University College London
Clinicaltrials.gov Identifier
Z6364106/2017/11/100, UCL Data Protection Registration No.
Duration of Study in the UK
1 years, 4 months, 1 days
Research summary
This study sets out to develop and evaluate a mobile app (called Power Up for parents) to promote parent’s involvement in shared decision making (SDM) in Child and Adolescent Mental Health Services (CAMHS). Results from this study can have implications for the adjustment of SDM approaches taken by clinicians in CAMHS and inform the level of support parents need when choosing to be involved in the SDM process.Outcomes will inform the feasibility of a full RCT and present evidence for preliminary effectiveness.
Over the course of 18 months, a 2 stage process, consisting of the Development stage and Pilot Testing stage of the Power Up for Parents app will be conducted.
Procedure:
- Researchers will obtain informed consent from parents/ caregivers prior to all stages of involvement in this study.Development Stage:
Focus groups and interviews with (up to 50) parents and (up to 24) clinicians will be conducted; Interview schedules will aim to capture parents’ emotional state, coping strategies, preferences for involvement in SDM, decision support needs and situations within which the app can be best utilized.Pilot Testing Stage:
Up to 90 parents will be invited to participate in the testing stage with approximately 30 being allocated Version 1 of Power Up, another 30 being allocated Version 2 of Power Up and the remaining 30 as the control receiving no app but subject to same battery of questionnaires and treatment as usual. This study design will allow us to assess the acceptability, usefulness, usability, and preliminary effectiveness of Power Up for parents in addition to examining feasibility and facilitate planning of a full RCT. Measurements used will assess shared decision-making, usefulness and acceptability and will be completed by parents/ caregivers at baseline and three month follow ups (or case closure/discharge, whichever comes first). Clinicians’ perceptions of the parents' involvement in SDM will also be examined.REC name
London - Surrey Research Ethics Committee
REC reference
18/LO/0978
Date of REC Opinion
3 Jul 2018
REC opinion
Further Information Favourable Opinion