POST study: Palliative Care and Oncology Survey on Terminology v1
Research type
Research Study
Full title
What do individuals known to palliative care and oncology services think about the terminology used to describe them?
IRAS ID
328818
Contact name
Andrew Davies
Contact email
Sponsor organisation
Our Lady's Hospice & Care Services
Clinicaltrials.gov Identifier
NCT05871996, Clinicaltrials.gov Protocol Registration and Results System
Duration of Study in the UK
0 years, 11 months, 30 days
Research summary
The term ‘"cancer survivors" is widely used but has different definitions. One definition describes "cancer survivors" as individuals from the time of diagnosis throughout their lives, which includes people living with cancer and people free of cancer. The views of some groups included in this definition of "cancer survivors" have rarely been assessed, including those with cancer on anticancer treatment and those known to palliative care. How they view these terms could have important implications for how they receive care services. This is an international multi-centre observational study. It aims to recruit 3830 patients internationally, with 766 from the UK. The Royal Surrey NHS Foundation Trust is the lead UK site. Participants known to cancer and/or palliative care hospital or hospice services as inpatients, outpatients or community patients across the UK will be asked to complete a survey during a one-off visit which should last around 15 minutes. The survey asks a series of questions to determine the perceptions of patients known to cancer and palliative care services about the terminologies used to describe them.
REC name
London - Surrey Research Ethics Committee
REC reference
23/LO/0834
Date of REC Opinion
9 Oct 2023
REC opinion
Favourable Opinion