Physical (autonomic) symptoms in people living with Lewy Body Dementia
Research type
Research Study
Full title
Living with the physical (autonomic) symptoms of Lewy Body Dementia: Research to explore the experiences and views of patients and family members.
IRAS ID
202875
Contact name
Allison W Bentley
Contact email
Sponsor organisation
Cambridgeshire & Peterborough Foundation Trust
Duration of Study in the UK
1 years, 8 months, 18 days
Research summary
This study focuses on Lewy body dementia (LBD) which includes two related disorders: dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD). Lewy body dementia is a common neurodegenerative disease which can have a significant impact on a person's autonomic (involuntary) nervous system. This system regulates the involuntary actions of many bodily functions such as bladder and bowel function and temperature; LBD can also affect cardiac function in a way that can lead to dizziness, falls and fainting. Some of these autonomic changes can be difficult to manage and distressing causing stress both for the person living with Lewy body dementia and their carers. The study aims to explore the physical symptoms that people living with Lewy body disease experience. This study is funded by the National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care (CLAHRC) East of England.
REC name
East of England - Cambridgeshire and Hertfordshire Research Ethics Committee
REC reference
16/EE/0159
Date of REC Opinion
27 Apr 2016
REC opinion
Favourable Opinion