PHANSS-1

• Research type

  Research Study

• Full title

  PHysical Activity for Non-ambulatory Stroke Stroke Survivors (PHANSS-1): Exploring the thoughts and views of stroke survivors who cannot walk independently following stroke and their carers

• IRAS ID

  136831

• Contact name

  Megan Lloyd

• Contact email

  megan.lloyd@gcu.ac.uk

• Sponsor organisation

  Glasgow Caledonian University

• Research summary

  Title: PHysical Activity for Non-ambulatory Stroke Stroke Survivors (PHANSS-1): Exploring the thoughts and views of stroke survivors who cannot walk independently following stroke and their carers

  Background:
  Stroke guidelines recommend PA; however non-ambulatory stroke survivors have largely been excluded from PA research. There is a lack of evidence, guidance and service provision for non-ambulatory stroke survivors. We defined the term ‘non-ambulatory’ as anyone who needs continuous or intermittent support of one person to help with balance or coordination. This is an important gap, because sedentary behaviour, known to be an independent risk factor for ill-health, places non-ambulatory stroke survivors at higher risk of ill-health. PA can help improve psychosocial functioning and adaptation to life after stroke. Evidence from clinical trials involving stroke survivors who can walk, cannot be applied directly to those who have difficulty walking as many of the interventions use walking as a main part of their programme. Therefore a programme tailored specifically for those who have difficulty walking after stroke is required. In order to design a new PA intervention for this population, it is important that views are sought, to ensure the intervention will be acceptable and possible.

  Research question:
  “What are the views of non-ambulatory stroke survivors and their carers on: needs, personal goals, barriers, motivators and preferred format for a PA intervention?”

  Study design:
  Focus group or interviews (according to preference) with stroke survivors and their carers, will be carried out on campus in a wheel chair accessible room at Glasgow Caledonian University (GCU). These discussions will last no longer than 75 minutes.
  Participants will be recruited through general practitioners’ surgeries throughout NHS Greater Glasgow and Clyde.
  GCU funds this study as part of a PhD degree. The Chief Scientist Office is the main funder of this project.

• REC name

  London - Surrey Borders Research Ethics Committee

• REC reference

  14/LO/0636

• Date of REC Opinion

  19 May 2014

• REC opinion

  Further Information Favourable Opinion