Perspectives on PROMs in Palliative Care for Heart Failure (PROMPT) V1
Research type
Research Study
Full title
The perspectives of patients, carers, clinicians and commissioners on the use of patient-reported outcome measures (PROMs) in palliative care for heart failure
IRAS ID
320181
Contact name
Nicola Walsh
Contact email
Sponsor organisation
University of the West of England
Duration of Study in the UK
1 years, 6 months, 1 days
Research summary
Patients are increasingly asked to complete questionnaires, called Patient Reported Outcome Measures (PROMs), which assess their symptoms and quality of life. These are used to identify any changes that result from the care they receive, and help plan their care for the future. Some of these questionnaires have been developed to assess the needs of patients in palliative care services. However, these palliative care questionnaires are often not aimed at specific conditions, despite people with different conditions having different palliative care needs. Given the historical focus of palliative care services on cancer, many of these generic questionnaires have been developed for use in patients with cancer, but it is currently unknown whether they are appropriate for use in patients with non-cancer conditions. This is particularly important given the expansion of palliative care service provision in recent years to include non-cancer conditions, such as heart failure.
This study aims to explore the views of patients with heart failure who are receiving palliative care, their unpaid carers, clinicians and commissioners on the use of generic palliative care questionnaires for patients with heart failure in order to produce recommendations for practice.
This aim will be achieved by interviewing participants on the choice of questionnaire, how the questionnaires are administered, and how the information from these questionnaires is used. Participants will be recruited from a community heart failure service in Southwest England working in partnership with specialist palliative care services. Findings from the interviews will be analysed together to produce a draft list of recommendations for practice. These recommendations will then be prioritised in an online workshop with experts.
This study is part of a University of the West of England funded PhD studentship.
REC name
East Midlands - Leicester Central Research Ethics Committee
REC reference
23/EM/0088
Date of REC Opinion
27 Jun 2023
REC opinion
Further Information Favourable Opinion