Personalised cancer care and support: Identifying what good looks like
Research type
Research Study
Full title
Coproducing personalised care in a digital age: using the Adversity, Restoration and Compatibility (ARC) framework to inform the co-design of a digital care planning tool for people with colorectal cancer. Phase One: Identifying what good looks like.\n
IRAS ID
312083
Contact name
Clair Le Boutillier
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
0 years, 11 months, 31 days
Research summary
People living with and beyond cancer have different needs at different times.\nAlthough the NHS is committed to providing personalised care and to identify\nindividual needs, we know that the content, delivery, and timing of personalised care\nand support planning differs across practice. The nature of the changing COVID-19 environment also means that existing supportive cancer care services that have traditionally used face-to-face approaches are being rapidly re-designed, with more services replacing in-person interactions with digital care planning. While the virtual environment provides an opportunity to offer timelier care, it also poses the risk of limiting access and influencing the quality of conversations and relationships between staff and patients. We want to understand how digital personalised care and support planning (called the electronic holistic needs assessment and care plan) works from the perspectives of people who are affected by colorectal cancer, and from clinicians. We will explore the perspectives of people living with and beyond cancer, and the clinicians working with them. We will observe clinical practice and gather the views of patients and staff. Improving personalised care planning means that everyone’s support needs can be identified, and clinical services can be directed to those in need. It can also ensure that information and support specific to each person’s cancer experience is received at the right time.
REC name
North West - Greater Manchester East Research Ethics Committee
REC reference
22/NW/0359
Date of REC Opinion
6 Feb 2023
REC opinion
Further Information Favourable Opinion