PEACE-COS
Research type
Research Study
Full title
Developing Person-Centred Outcome Measures in End-of-Life Care in Critical Care: a qualitative study and Delphi exercise to inform a Core Outcome Set.
IRAS ID
306272
Contact name
Natalie Pattison
Contact email
Sponsor organisation
University of Hertfordshire
Clinicaltrials.gov Identifier
CRD42022344709, PROSPERO; Project ID 1970, COMET
Duration of Study in the UK
2 years, 0 months, 1 days
Research summary
At the moment, researchers use a range of different outcome measures to evaluate end-of-life care in critical care. For example, one research study may measure how long patients stayed in critical care while another study may measure what treatment a patient received. Using different outcome measures makes it difficult to compare or combine study results as only significant findings are reported, and other findings are ignored.
The aim of the PEACE-COS study is to generate consensus opinion and use family and expert experience to inform the development of a person-centred core outcome set for end-of-life care in critical care. A Core Outcome Set (COS) brings together an agreed list of outcomes that all research studies should measure and report as a minimum in a specific health area. It is made up of two parts – ‘what’ to measure and ‘how’ to measure. The PEACE-COS study is part of a wider piece of research and will focus on what should be measured. It will involve four interlinked stages:
Stage 1. A systematic review of the literature to identify outcomes and measurement tools reported in research studies.
Stage 2. An interview study with family members that have experienced end-of-life care in critical care to find out their views on what they identify as important outcomes.
Stage 3. A survey of experts and experts by experience (Delphi study) in end-of-life care in critical care will be invited to rate the importance of the outcomes identified in stages one and two and suggest other potential measures that may have been missed in a series of rounds.
Stage 4. A group meeting of experts and families to agree a draft of 'what' should be included in a core outcome set.
REC name
North East - Tyne & Wear South Research Ethics Committee
REC reference
23/NE/0057
Date of REC Opinion
30 Mar 2023
REC opinion
Favourable Opinion