PCOS-SEva

• Research type

  Research Study

• Full title

  Polycystic Ovary Syndrome Service Evaluation- Understanding the experiences of people with Polycystic Ovary Syndrome about emotional wellbeing and healthcare services

• IRAS ID

  299243

• Contact name

  Punith Kempegowda

• Contact email

  p.kempegowda@bham.ac.uk

• Sponsor organisation

  University of Birmingham

• Duration of Study in the UK

  1 years, 3 months, 31 days

• Research summary

  Polycystic Ovary Syndrome (PCOS) is the most common disorder affecting women of reproductive age with multi-system manifestations. Criteria for diagnosis includes oligo/anovulation, hyperandrogenism and polycystic ovaries. Patients can present with a wide range of symptoms that may be psychological, reproductive or metabolic in nature. These women are also at risk of developing long-term complications such as type 2 diabetes mellitus, cardiovascular disease and fertility issues. The complex and diverse nature of the condition has led to debate surrounding diagnostic criteria among experts and dissatisfaction with the diagnosis experience among patients. As such, individualized, focused patient care is best managed by a specialised multi-disciplinary team in an out-patient clinic.
  Multi-disciplinary clinics are currently provided in various centres but there has been little investigation into the service provided. As a result, we have little insight into the acceptability of the service to patients and whether they have a good experience. Furthermore, we have limited information on the financial efficiency of the clinic and whether it is being managed appropriately in terms of healthcare costs.
  We, therefore, propose this study to
  • measure the prevalence of anxiety, depression, body dysmorphia, weight stigma and psychosexual dysfunction in women with PCOS
  • understand the current experiences of evidence based clinical practice amongst medical students and healthcare professionals.
  • evaluate the acceptability, financial efficiency and equitable use of the service by ethnicity and deprivation of the PCOS services
  • understand the experiences of people before, during and after the diagnosis of PCOS

• REC name

  London - Riverside Research Ethics Committee

• REC reference

  22/PR/1178

• Date of REC Opinion

  2 Nov 2022

• REC opinion

  Further Information Favourable Opinion