Patient journey for those with mesothelioma: a palliative care review
Research type
Research Study
Full title
The journey from diagnosis to end of life care for patients with Malignant Pleural Mesothelioma (MPM) – a retrospective palliative care review
IRAS ID
309477
Contact name
Donna Wakefield
Contact email
Sponsor organisation
North Tees and Hartlepool NHS FT
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Research has shown that patients with mesothelioma face a lot of uncertainty including how their disease will progress, which symptoms they will experience and how/who their care will be co-ordinated. With other types of lung cancer, research has shown that it is helpful to see a palliative care specialist early but in malignant pleural mesothelioma it is not yet known at what point specialist palliative care teams should be involved and how they co-ordinate with other healthcare professionals such as the lung team.
This study will involve looking back through the records of all patients who have been diagnosed with malignant pleural mesothelioma and then died over the past 5 years across all of Teesside (in the hospitals, home and hospices). Recording anonymised details to help us to learn lessons from approximately 100-150 patients about what happened in their journey between diagnosis and death including symptoms experienced, need for hospital or hospice admission, if they made any plans for the future (advance care planning) and the role different health care professionals including specialist palliative care played (and when).
This valuable information will be discussed at an event with patients, carers and healthcare professionals to identify key learning points from this data, such as symptom burden, management and how care is co-ordinated to try and improve information provided to patients and carers and explore how we can make recommendations to improve care and priorities for future research.REC name
West Midlands - Edgbaston Research Ethics Committee
REC reference
22/WM/0033
Date of REC Opinion
26 Jan 2022
REC opinion
Favourable Opinion