Patient codesign
Research type
Research Study
Full title
Patients as learners and codesigners: an examination of patients’ engagement and experience of codesign of an educational resource
IRAS ID
328243
Contact name
Rebecca Rochon
Contact email
Sponsor organisation
Buckinghamshire New University
Duration of Study in the UK
0 years, 6 months, 9 days
Research summary
This study will explore how patients engage with designing a learning resource when working with experts (codesign).
Patient and public involvement (PPI) is a valued approach to improve the relevance and quality of medical research. However, the process of collaboration (codesign) with patients is often invisible and further research into the experience of patient engagement in such activities is needed to develop effective strategies for their involvement.
The purpose of the study is to explore the effectiveness of the codesign approach outlined by Barbera, Garcia and Fuertes-Alpiste (2017) as a framework for patient engagement with the process of developing an educational resource and develop further understanding of patients’ experiences in the engagement process. This will help future studies improve their collaborative working with patients and the public.
We will recruit adult patients who had surgery at Guys and St Thomas’s NHS Hospitals Trust which resulted in a wound healing leaving them with a scar. These patients will be identified through the surgical wound monitoring programme. We will approach patients who meet the inclusion criteria until we reach six patients. Patients will be invited to codesign an animated video learning resource for patients about wound healing after surgery. This will involve them attending three meeting via Microsoft Teams. At these meetings, the six patients and the research team will focus on concepts, content and design. In the third meeting, patients will be shown the resulting prototype storyboard for the video resource and will be asked about their experiences of participating in the process. All three meetings will be recorded for sound and vision and analysed using qualitative thematic analysis, focusing on patient contribution and patient experience.
The study will report on the codesign process, including patients’ reflections on codesign and the extent to which the codesign methodology has informed the development of the resource.
The duration of the study is seven months.
REC name
Wales REC 7
REC reference
23/WA/0168
Date of REC Opinion
12 Jun 2023
REC opinion
Further Information Favourable Opinion