Participation following childhood acquired brain injury. Version 1.
Research type
Research Study
Full title
Participation in the home,community and school following in-patient rehabilitation for severe childhood acquired brain injury.
IRAS ID
96967
Contact name
Susan Walker
Contact email
Sponsor organisation
The Childrens Trust
Research summary
Severe acquired brain injury during childhood causes significant changes to neurological functioning resulting in
impairment to ongoing
development. There is much research to indicate these children can experience wide ranging
learning, behaviour and social/emotional difficulties which are not well recognised, understood or provided for at
home, in the community and at school leading to restricted participation and unmet needs.
This study aims to investigate the indicators and extent of participation at home, in the community and at school for
children discharged from a residential acquired brain injury rehabilitation programme, as expressed by parents,
teachers and children themselves.
The Child and Family Followup
survey (Bedell, 2011), designed in North America, uses parental report to measure the
impact of impairments and environmental factors on their children's participation at home, in the community and at
school. The capacity of this survey to capture the range of participation issues concerning parents in the UK regarding
their child following return to home and school after acquired brain injury is unknown.
Semistructured
interviews of children, parents and teachers, information from statutory documents relating to each
child’s special educational needs, together with the survey itself will be used to identify children’s participation and the
associated needs of parents and teachers in their role of supporting that participation.
The Children’s Trust has an interest in understanding outcomes and participation of children who have been
discharged from their residential rehabilitation programme which can help to inform and shape the content of their
rehabilitation programmes. Outcome and participation data following discharge is not currently collected. The findings
from the present study will help to inform methods of collecting outcome data.REC name
Wales REC 3
REC reference
14/WA/0142
Date of REC Opinion
31 Jul 2014
REC opinion
Further Information Favourable Opinion