Parental experiences of taking a child home on long term ventilation

• Research type

  Research Study

• Full title

  A Qualitative Study Exploring the Lived Experiences of Parents Preparing to Take their Child Home on Invasive Long Term Ventilation (I-LTV)

• IRAS ID

  143567

• Contact name

  Melanie McFeeters

• Contact email

  Melanie.Mcfeeters@nhs.net

• Sponsor organisation

  De Montfort University

• Research summary

  Title: A Qualitative Study Exploring the Lived Experiences of Parents Preparing to Take their Child Home on Invasive Long Term Ventilation (I-LTV).
  Due to medical advances and improvements in technology, recent years have seen a rapid expansion in the number of children being commenced on invasive long term ventilation (I-LTV). These technology dependent children have complex health needs and in the past would have remained in hospital however it is now accepted that most of these children once medically stable can be cared for by their parents at home. In preparing for the child’s discharge from hospital the parents frequently endure many frustrations and challenges and the process can take many months.
  This qualitative research study aims to explore the parental experiences of the hospital to home pathway and asks ‘What are the parental experiences of the hospital to home transition pathway when preparing to take a child requiring long term ventilation home?’
  The research will involve face to face interviews lasting approximately 90 minutes with around 20 individual parents who have had a child commenced on I-LTV. All children will have been patients at either the Leicester Royal Infirmary or Queen’s Medical Centre, Nottingham during the last three years. The researcher will use unstructured in-depth interviews to ask the parents to describe their experiences of preparing to take their technology dependent child home from the hospital setting. All interviews will be recorded with the information obtained being analysed to identify key themes and concepts that are common to the parents. This information will help to guide and inform both healthcare professionals and future parents of the issues that are important to families and will aim to enhance current and future practice and improve the quality and experience of families involved in this difficult time of transition.

• REC name

  East Midlands - Nottingham 1 Research Ethics Committee

• REC reference

  14/EM/0097

• Date of REC Opinion

  20 Mar 2014

• REC opinion

  Favourable Opinion