Palliative care for minoritised ethnic groups. V1.0

  • Research type

    Research Study

  • Full title

    How can palliative and end-of-life care be better provided for people from minoritised ethnic groups? A realist approach with a mixed methods multiple case study design.

  • IRAS ID

    344205

  • Contact name

    Catherine Walshe

  • Contact email

    c.walshe@lancaster.ac.uk

  • Clinicaltrials.gov Identifier

    N/A, N/A

  • Duration of Study in the UK

    1 years, 6 months, 28 days

  • Research summary

    Background

    We know that people from minority ethnic groups who may benefit from palliative care do not always use health and care services in the same way as those from white British backgrounds. One reason could be because services are not specifically tailored to these communities or may not offer care that supports their cultural and religious needs.

    What do we want to find out?

    We want to understand more about why this happens. We want to make suggestions on how we can make this better for people from minority ethnic groups who may benefit from palliative care and their families.

    How do we plan to do this?

    We will conduct new research to explore how things work in different areas of England.

    • We will talk to people from minority ethnic groups in carefully selected areas, who may benefit from palliative care. We will talk to both adults and young people (aged 12 +).
    • We will also talk to their family and friends.
    • We will also speak with a range of health and social care professionals and organisations that provide care (such as in the NHS, and other care providers such as hospices, other charities, and social care providers).
    • We will look at local plans and policies in these areas. We want to understand what has worked well and not so well, so that we can suggest better ways of providing care.
    • We will produce papers aimed at academic audiences, briefings aimed at policy audiences, and plain language summaries aimed at patients, the public and learning institutions.
    • The study will take place from August 2024 until February 2026.
    • It has been funded as part of the NIHR Palliative and End of Life Care Policy Research Unit.
    • Patient, Public and Stakeholder Engagement is embedded throughout this project.

  • REC name

    North West - Liverpool Central Research Ethics Committee

  • REC reference

    24/NW/0214

  • Date of REC Opinion

    22 Jul 2024

  • REC opinion

    Further Information Favourable Opinion